Відео

Don't stop, keep it going ❤

Hi Asad Adnan from Pakistan 😊

Hi John Nixon from England 🏴󠁧󠁢󠁥󠁮󠁧󠁿

Do you have any information about CMT2Z my son have it he is 2

we from india how we can attend this

My family has 1X which shows up differently each generation was not diagnosed until I was in my 30's and had no systems but my grandson is a lot like my father just not as bad since he was 9 and now 25.

Please, just make your own research 🙏and write this key words on Google research : " Research Charcot deases and grounding " Then watch vidéos on earthing or grounding. I am french and fibromyalgic . I cure myself with grounding since 10 years . It is wonderfull !!! I sleep on a grounding sheet every night , and practice grounding outside as often as I can ( I walk barefoot or with a spécial équipement for shoes). It would be great for you to try !!! I wish you the best 🤗

In hindsight I have had CMTA1 from childhood. As a child my father would wrestle me and tickle the sole of my left foot, I would fight like hell because of the pain. My brother (1 year younger) was ignored because he didn’t react and showed no reaction,so in hindsight since a child. Thanks

Brilliant and thank you . CMT1A x

If you need test-patient let me know!

I take blood thinner so cannot take aspirin and NSAIDS.

'promosm'

❤

This was a great video-thank you all for participating so that CMTers like myself can get more information about the process!! And Dr. Pheffer-you're not allowed to retire! :)

I am Rajesh from India I have suffering for CMT 4c plase halp me sir

It's not right to keep people disabled and suffering, when the cause can be found and a cure. I for 1 am sick and tired of constantly getting told there's no cure. If vaccines can be made to manipulate the immune system to make parts of viruses, then the causes and a cure can most certainly be achieved for people who have this cmt symptom.

Im father for a beautiful son have charcot Marie tooth actually he iz 8 years ago so i asked if you can help me for videos for child exercises. Thanks

you move your feet like you do not have CMT

I have cmt and I was doing OK, until later in my life I ended up getting lyme, mold mycotoxins and were found by a simple urine test. But now im not getting any help because of a nuero lyme and mold diagnosis. But these real diseases worsened my cmt symptoms. Supplements do work. I had testing done for deficiencies and there are many difficiencies that Supplements do help out that just food alone won't replenish. Alpha-Lipoic acid, oleic acid, minerals, omega oils. Supplements are in addition to nutritious food and herbs and spices and also are good to play catch up on the deficiencies cmt and these pathogen diseases cause. The myelin sheath is a fatty nerve protector that is damaged. How about finding the cause of cmt and a real cure. These nuerological symptoms have causes and there are pathogenic diseases and environmental illnesses that cause the myelin sheath and nerve damage. Stem cells therapy is a therapy that repairs nuerological damage. All I was told growing up was stretch and exercise a little, I was never told about that there are diseases that can worsen and cause nuerological problems. I was never told about what deficiencies cmt can cause, never told what vitamins, minerals and in supplement form because food alone doesn't supply enough. My nuerlogists over the yrs basically did nothing but say we can't do anything for you. I'm sorry but nuerology and the cmt organization do bare minimal to help. Now im stuck with real diseases in my body and an immune system cell disease, but everyone and drs can only see the cmt on the outside. Life is precious until Medicine foils things for you. It's a very big problem. Cmt has a cause to it and a cure can be found, but instead medicine will just do nothing and the diseased person and me will just fade away and this medical system don't care. Everyone is nice, but the policy that is followed are severely and chronically diseased policy causing human beings health problems.

I am 49 and just told today I probably have CMT1 but have to follow up with neurology. I have had symptoms since childhood. Your boy is too young to understand how lucky he is to have YOU as his advocate. Thank you for being a good momma

How can i come to your group, I have CMT and I have no body here and I’m from Jordan 🤷🏻‍♂️

I’m 56 and always knew something was wrong .I tried to hide it for as long as I could my family never had the resources to get me tested . My kid also has it this disease ruined my life

I live with CMT and I will say the main pain I deal with daily is a form of extreme restless legs syndrome and extreme fatigue. Any thoughts on what to do?

I'm 64i had a stroke and now I NT TO WALK257PMcan u help me pick a b4CE SO I ÇAN START WALKIÑGIM⁶4I M A EITEDMDIA SSSTNTI WANT TO GOBACTO WOR

it is shocking to me that since this is such a common cause of hereditary neuropathies, doctors don't screen for it straightaway.

I am 70 & just diagnosed with CMT. Now I know why I have always been a toe walker!

I have cmt 1a and 2a

Thank u

Thank you. My family has cmt 1a x 4.

THKS FROM CANADA

I have cmt 1a and protein(steak or salmon) at night causes me severe burning searing neuropathic foot pain at bedtime.

Doesn’t sorbitol cause the nerve damage seen in diabetic peripheral neuropathy?

PHENOMENAL!!

Thank you for giving us hope!

Thank you!!! I have cmt 1a.

I'm almost 40/f, just went to the Dr recently for breathing issues, never had asthma, I've always felt I've had breathing issues due to CMT weakness so they're doing a chest xray and looking into it. This presentation really clarified a lot and is very helpful and just validating to the issues I've had. Thank you for the great work!

How do you know if your orthopedic surgeon is familiar with this?

I'm going to have foot/ankle surgery for my CMT foot at Duke this spring. Type1a.😮

Since I've been on carnivore diet my symptoms have been so much better. Always avoid carbs, sugar, seed oils and anything processed.

HNPP ¿ HAY ALGUN DESCUBRIMIENTO RECIENTE PARA SU TRATAMIENTO ? ¿ QUE FARMACOS HAN DADO MEJOR RESULTADO ? AGRADECERÉ SU AYUDA E INFORMACION ATTE RAUL RAMOS

Thanks for the Video, very informative. CMT was recommended by my VA clinician for my PTSD, think I'll f***ing pass on this BS.

Estou com Charcot à muitos anos.Sei o qto é difícil essa doênça.

Thank you for sharing the testimony

So nicely explained. It really helps us know what to do and how much

Due to having a new Patient with CMT Disease i did bit of research into Pubmed. Throughout the Systematic Reviews and RCT´s i did not find any conclusive Evidence on Training Intesity and Exercice . Is there any recommendation on Training Intensity you could give? Is overexertion a temporary risk for the day or could there be long-term harm for my patient?

Dont lose hope guys ❤️ its okay if we can't make others understand why we are the way we are. It's alright if many of our goals and dreams are not there anymore. Just breathe

I have CMT and I live a plant-based lifestyle. I get plenty of protein from beans, tofu and so forth. I also take a few supplements and hemp protein. I think my diet has been very beneficial for me. It keeps me at my optimum weight and gives me better energy than a meat-based lifestyle. Carrying around too much weight is very bad for people with CMT. Too much stress on the muscles and joints. It's much easier to carry around a light body than an overweight one.

Sir gene therapy works ??

I have CMT . Does turbo med handle loss of balance? Apart from drop foot which turbo med assumed to handle